Tuesday, April 06, 2010

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A bubble of pain ...


A very tough day for my boy today. He was writhing in pain for a large part of the day. Even asked me to knock him out. He is living in a bubble of pain right now, with (from his point of view) no way out. Very tough. Finally, we convinced the medical staff to push him to the head of the queu for a scan on his abdomen. We got he results tonight and they are not the best. Some more of his intestine, it seems, has a very poor blood supply - if this doesn't improve, it could mean he loses more of it in another op - and that could be disastrous - apart from all the heart stuff and infections he has.
We have to wait and see right now - and the there's the infection on his heart valves and then there's the hole through the inner wall of his heart. He has on hell of a fight ahead of him - he has come a long way - ti seems a miracle that he has gotten this far - but I am very worried about how he will handle the news of the strong possibility that if he survives - he will have to wear a colostomy bag for the rest of his life. I wish I could trade places with him. I so wish I could,
JBW

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16 Comments

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Anonymous 10:01 pm

Tough times, I pray that everything will turn out ok. You and your family have been so strong keep it up.

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Anonymous 11:04 pm

Your family are in our prayes,love and light to you all.

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With many of us being parents who read your blog, this experience is very moving for us. Thank you for sharing this with us. Sometimes life slams us to the ground, holds us there and feels like its choking us. We can deal with this, but seeing our loved ones struggle is the most difficult experience of all.
Best of luck to Ronnin

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oh John thats sad news. We hope it doesn't turn out to be as bad as that. Thinking of you guys

Geoff

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As a father I couldn't help but cry reading your blog. I wish you all the best.

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So sorry to hear that. Best of luck to Ronin I really hope it will turn up for the best.

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John
Ronin has astounded us before with his amazing resillience and defied the odds and hopefully he will again. As his parent, his pain is your pain. I hope he will turn the corner soon and show some significant improvement that will let him be pain free. Love Soola

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Thanks everyone, your support is heart-warming and does give us a big boost. if you have children, just love them a little more tonight - we all need these reminders at times - how precious and fragile life can be at times. Thank you all

JBW

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Anonymous 12:21 pm

I do have children and this breaks my heart to read, I have been loving the children just that much more lately.

Our thoughts are with you all John.
love Glen & Ange

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Anonymous 3:56 pm

The Loyalty, Strength. and Love you have for one another is what will get you through this, believe and continue being positive

In our Prayers

Charlie T

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What parent wouldn't take their child's pain or trauma in a heartbeat? next to their health and happiness our own feels very disposable or negotiable. Having to watch and wait for such a proactive person as yourself must be excruciating. A new and cruel challenge for sure, but if anyone can find the strength, I believe you can John. All the best as always.

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Anonymous 7:25 am

an agonising time for all involved. My heart goes out to you all John. I know that no one is better qualified to come through this than the Will family....

Mike Fooks

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Anonymous 6:40 pm

Hey John hang in there....I pray for your family.....

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Anonymous 12:10 am

I totally get where you are coming from when you say you would trade places with Ronin. I know I would. I would give my own life in a second to help one of my kids.

Clint

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John, I hope that my healing thoughts for Ronin will help him through these latest hurdles. Love to all of you.

Cindy,
Sausalito

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Damn John - i lack emotion at the best of times, but hearing your voice in my head reading your words sent a chill down my spine...
My thoughts are with you & your family,
Steve Foulds

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