A bubble of pain ...
A very tough day for my boy today. He was writhing in pain for a large part of the day. Even asked me to knock him out. He is living in a bubble of pain right now, with (from his point of view) no way out. Very tough. Finally, we convinced the medical staff to push him to the head of the queu for a scan on his abdomen. We got he results tonight and they are not the best. Some more of his intestine, it seems, has a very poor blood supply - if this doesn't improve, it could mean he loses more of it in another op - and that could be disastrous - apart from all the heart stuff and infections he has.
We have to wait and see right now - and the there's the infection on his heart valves and then there's the hole through the inner wall of his heart. He has on hell of a fight ahead of him - he has come a long way - ti seems a miracle that he has gotten this far - but I am very worried about how he will handle the news of the strong possibility that if he survives - he will have to wear a colostomy bag for the rest of his life. I wish I could trade places with him. I so wish I could,